"Tivo-ifies the web" Paul Kedrosky

The Boy Whose Skin Fell Off

Part 2

Part 3

Part 4

Part 5

Total time: approx. 50 mins.

Jonny Kennedy lived 4 decades with a dreadful illness that causes unimaginable pain, before contracting terminal cancer. But he was not scared or bitter. For him this mortal coil was a burden that once lifted by death would set him free for an afterlife which would be wonderful.

Kennedy agreed to make a documentary of his last months, which is a groundbreaking for several reasons. It deals with a profound issue head on, with humor and insight and with neither clawing sentimentality nor morbid voyeurism. The success of the film is principally the result of the endearing personality of Kennedy, who narrates the path leading up to his own death as if he is speaking from the grave.

The moment when he briefly lets his guard down is one of the most emotionally powerful pieces of television I have ever seen. Jonny Kennedy lived a life to remember and left a film to help do just that.


2 comments on “The Boy Whose Skin Fell Off

  1. Tom Foremski says:

    I have yet to see this, I have only seen the excerpt in the 50 Best Documentaries you posted, but it stood out head and shoulders beyond anything else. His suffering, his humility, humor, and lack of bitterness, is inspiring, so ordinary, so matter-of-fact, as if any one of us would be able to find the same courage and attitude that he displays. Religions venerate Jesus Christ and a gazillion saints and holy men for the suffering they had to endure. This man bore more suffering than any of them and did not make any claim to being anything more than an ordinary man, born with a “duff shell.” I have to go now and find a kleenex…

  2. Lou says:

    This was a terrific movie! My dad has a disability so I find myself drawn to movies like this. Stories like this reaffirm my belief that life is pretty grand no matter how f-ed up your body is. I loved Jonny’s humor, charm and honesty. I was moved by how he talks about the feeling sun on his face and the breeze from the river after getting the news he’d not live through another year. Even with the suffering he endured he still valued being alive and experiencing the pleasures of being alive: sunlight, a breeze, friends and family, a pretty woman.

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