http://smashingtelly.com/2009/04/07/the-boy-whose-skin-fell-off/ A hand picked TV channel Thu, 10 May 2012 11:22:01 +0000 http://wordpress.org/?v=2.8.2 hourly 1 http://smashingtelly.com/2009/04/07/the-boy-whose-skin-fell-off/comment-page-1/#comment-2255 Lou Mon, 27 Apr 2009 16:58:26 +0000 http://smashingtelly.com/?p=919#comment-2255 This was a terrific movie! My dad has a disability so I find myself drawn to movies like this. Stories like this reaffirm my belief that life is pretty grand no matter how f-ed up your body is. I loved Jonny's humor, charm and honesty. I was moved by how he talks about the feeling sun on his face and the breeze from the river after getting the news he'd not live through another year. Even with the suffering he endured he still valued being alive and experiencing the pleasures of being alive: sunlight, a breeze, friends and family, a pretty woman. This was a terrific movie! My dad has a disability so I find myself drawn to movies like this. Stories like this reaffirm my belief that life is pretty grand no matter how f-ed up your body is. I loved Jonny’s humor, charm and honesty. I was moved by how he talks about the feeling sun on his face and the breeze from the river after getting the news he’d not live through another year. Even with the suffering he endured he still valued being alive and experiencing the pleasures of being alive: sunlight, a breeze, friends and family, a pretty woman.

]]> http://smashingtelly.com/2009/04/07/the-boy-whose-skin-fell-off/comment-page-1/#comment-2197 Tom Foremski Thu, 09 Apr 2009 01:45:20 +0000 http://smashingtelly.com/?p=919#comment-2197 I have yet to see this, I have only seen the excerpt in the 50 Best Documentaries you posted, but it stood out head and shoulders beyond anything else. His suffering, his humility, humor, and lack of bitterness, is inspiring, so ordinary, so matter-of-fact, as if any one of us would be able to find the same courage and attitude that he displays. Religions venerate Jesus Christ and a gazillion saints and holy men for the suffering they had to endure. This man bore more suffering than any of them and did not make any claim to being anything more than an ordinary man, born with a "duff shell." I have to go now and find a kleenex... I have yet to see this, I have only seen the excerpt in the 50 Best Documentaries you posted, but it stood out head and shoulders beyond anything else. His suffering, his humility, humor, and lack of bitterness, is inspiring, so ordinary, so matter-of-fact, as if any one of us would be able to find the same courage and attitude that he displays. Religions venerate Jesus Christ and a gazillion saints and holy men for the suffering they had to endure. This man bore more suffering than any of them and did not make any claim to being anything more than an ordinary man, born with a “duff shell.” I have to go now and find a kleenex…

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